Another few months and two more infusions down! Things are getting a bit more difficult, but I am still hanging in there. I feel like I am almost at the point where I have to tell people that I meet or a new friend about it now...where as before I would just keep it quiet. #MaybeStillinDenial However, It's hard to hide that I am ALWAYS heading over to Walter Reed, and that I have crazy itchy skin and insane dry mouth. I bought a MULTI-PACK of back scratchers from Amazon...they are stashed in every room and car. There are also half glasses of water and water bottles strewn all over the house (which Jerome loves)...but I seriously cannot explain how annoying the dry mouth thing is!
Our friends that were visiting last week and I were laughing about it though, because every time I tell someone new, I start it with "so I have this little health situation going on right now"...and then when they react, I promptly say "it's okay though, I'm totally fine!". LOL...honestly, what is wrong with me?
I really do believe that somehow by the Grace of God, I am pretty "fine" though. Through this experience I have connected and "met" a few people online that are either going through the exact same thing or have a loved one that is. It has really opened my eyes about how scary, and unpredictable this disease is. It's very humbling to say the least. Every time I talk to my mom she tells me about someone asking about me or praying for me. I am SO thankful for the prayers and good thoughts...they are definitely helping me get through this!
So let's see, what else can I update on. DC is still crazy, and the traffic is really challenging my non-confrontational personality. The kids say that one of the biggest differences between here and Indiana is that everything takes three times as long and that mom has road rage now. Jerome is still doing a great job, and staying under the political radar...which makes me very happy. I have been invited to join a "club" in DC (that's a big thing here). It's called the International Neighbors Club. It's a group made up of Ambassador's spouses, and a few other government spouses. I went to my first meeting and sat next to Candy Carson. Who by the way was so down to earth and sweet. At the first meeting, everyone kept asking me where I was from...it is an International Club, so almost everyone is from a different country. My ongoing joke was that I am from the midwest...which pretty much seems like a different country from DC, so that's probably why I got invited. The truth is I met the beautiful wife of the Swiss Ambassador at an event, and chatted her ear off about how hard it is to meet friends here, and then I received the invite call the next week. I'm really excited and honored to be included!
Well, that is about all I have! I'm heading to the Infusion Spa tomorrow again. My friend Amy and I decided that I am going to think about it like a spa day...time to put your feet up, read your book, plus they give you a toasty warm blanket and snacks. :)
Love,
Lacey
P.S.
Here's just one pic from last weekend. Our friends, the Zaun's came out for their Fall Break. We had so much running around being tourists!